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Our Story

Alström Angels was formed in March of 2012 by Cassie Johnston and her family, shortly after her 3-year old daughter, Bryce, was diagnosed with Alström Syndrome; one of the rarest and most devastating diseases in the world.

 

Through the family’s shock and profound sadness from the diagnosis, they made a decision to do something positive for Bryce that would outshine her crushing new reality.  This decision was the beginning of Alström Angels.

 

Their initial intent was three-fold: bring more awareness to Alström Syndrome so children could be diagnosed earlier, raise funds to conduct more medical research, and better family support for Alström families around the world. 

 

As their mission gained momentum, the Johnston family realized they had an opportunity to help other children diagnosed with the individual aspects of Alström Syndrome and help other families dealing with the difficulties of a rare disease.  This grew into a secondary mission to benefit the children and communities in their home region of West Texas.

Our Mission

Alström Angels is a non-profit charity dedicated to raising funds for Alström Syndrome genetic and medical research, increasing awareness of the rare disease among the general public and medical communities, and improving family support for those affected by the Syndrome.

Community Transformation

Through the efforts and fulfillment of the Alström Angels mission, we strive to bring awareness to the individual illnesses and disabilities associated with Alström Syndrome that affect other children in our local community. Our first community transformation project, Milestones Development & Play Park is underway and will open in the Fall of 2022.

Leigha Baseball
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Our Goals

Raise Funds

Alström Angels is a 501(c)3 non-profit. All proceeds donated to Alström Angels go directly to fulfilling our mission.

Raise Awareness

Our goal is to raise awareness among the general public and medical communities. Doing so provides:

Provide Support

We provide support to Alström families by:

Board of Directors

Cassie Johnston - Executive Director & Founder - Alström Angels
Cassie Johnston

Executive Director & Founder

jennifer burke - Director of Special Events - Alström Angels
Jennifer Burke

Director of Special Events

Amy Najjar - Secretary - Alström Angels
Amy Najjar, MA, OTR

Secretary

Javi Martinez - Chief of Staff - Alström Angels
​Javi Martinez

Community Outreach

Carrie Broadus
Carrie Broadus

Board Member

Gina Flores
Gina Flores, Au.D., CCC-A

Board Member

Gregg Johnston
Gregg Johnston

Board Member

Meggan Wilkes
Meggan Wilkes RN

Board Member

Lynn Johnston - Treasurer - Alström Angels
Lynn Johnston

Treasurer

Justin Smith

Board Member

Kate Silva Board Member
Kate Silva

Board Member

Jonathan Silva Board Member
Jonathan Silva

Board Member

Jessica Barrera

Administrative Assistant