Lubbock Family Copes With Rare Genetic Disease

Five-and-a-half months after her daughter Bryce was born, Cassie Johnston began noticing a strange pattern in Bryce’s eye movements.

“Her actual eye balls were wiggling up and down,” Johnston said. “We thought she was having a seizure so we went in to the doctor.”

The doctor referred them to an ophthalmologist. The ophthalmologist advised the family to get an MRI and brace themselves for the result, which he believed to be a brain tumor, Johnston said, adding results showed there was nothing.

This was the beginning of a “diagnosis rigamaroo,” she said.


Read the rest of the article written by ELLYSA GONZALEZ for The Lubbock Avalanche-Journal online!

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